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CAN'T BREATHE? SUSPECT VOCAL CORD DYSFUNCTION! |
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Who knows a lot about VCD, in the medical community? |
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Both my husband and I found out we each had VCD (at different times), by being diagnosed at National Jewish Medical & Research Center (NJC), in Denver, Colorado. From our personal experience with VCD, we learned that National Jewish Center (NJC) has kind medical people with excellent knowledge about VCD and other respiratory ailments, etc. National Jewish Center uses a team approach, including pediatric and adult doctors, allergists, environmental & occupational doctors (clinical ecology doctors), ear nose and throat doctors, lung doctors (pulmonologists), speech therapists (now called speech pathologists), psychologists, psychiatrists, emergency room nurses and doctors ("triage"), clinic nurses, respiratory therapists, social workers, physical therapists, occupational therapists, recreational therapists, pharmacists, lab technicians, admissions personnel, medical librarians, records personnel, and others. National Jewish Center's phone numbers are 303-388-4461 and 1-800-222-LUNG(5864) -- then press whatever number the recording says to press, to be connected with the LUNG LINE NURSE. Call Monday-Friday, 8 am - 4:30 pm, Mountain Time (Colorado time). For useful information on "How to Become a Patient" at National Jewish Hospital, click on this link: http://nationaljewish.org/patient-info/index.aspx This link also includes phone numbers for "specialty clinics" at National Jewish Center, such as Sleep Health Centers (for sleep apnea, etc.), Mycobacterial/Infectious Diseases, and Psychosocial Services. National Jewish Center helps patients with all kinds of respiratory conditions, auto-immune conditions, and other conditions. If you can't go to National Jewish Medical & Research
Center, ask
the LUNG LINE NURSE for names, phone numbers, and addresses of
doctors
and Speech Pathologists/Therapists in YOUR AREA who trained
at
National Jewish Hospital, and who know about Vocal Cord
Dysfunction,
etc. Another helpful way to find a VCD-knowledgable SLP (Speech & Language Pathologist) and MD (medical doctor) in your area, is to post a question on the "sid3voice" "listserve", a voice forum used by many SLP's. The SLP's can also refer you to doctors in your area who know a lot about VCD, to help with diagnosis, treatments, etc. Please see 10 b, on webpage 4, for how to join the
sid3voice
listserve (voice forum). While waiting for an update on website,
regarding
how to join the voice forum, you can email me to place a message for
you,
on the voice forum. See email link, at bottom of this webpage
7 (note: I have a new email, as of Jan., 2008). For people in GERMANY, Marianne Krommer said (1/03) there is
the first
SELF-HELP GROUP for VCD patients in Germany. See link (Z) on
"links"
webpage. The website for this group, is at: If you, or other DOCTORS, SPEECH THERAPISTS, CLINICS, etc. you know of, (here in the U.S. and also in OTHER countries) would like to be added to this section, please e-mail me. (See email, below.) You are at the bottom of web-page 7. Please read web-page 8,
next. |
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