CAN'T BREATHE? SUSPECT VOCAL CORD DYSFUNCTION!
How to recognize and accurately diagnose VCD
|First, GET IMMEDIATE EMERGENCY MEDICAL CARE,
for any breathing problem, in case of any life-threatening situations
or conditions. Then, encourage the medical personnel to include
and consider VCD in the differential diagnosis of causes of upper airway
obstruction. See TABLE 1, and additions to TABLE 1: Other
causes of upper airway obstruction.
There are additional conditions that can "mimic" VCD. See new information (from 2003 VCD Conference, etc.), in last part of this webpage, about Diaphragmatic Flutter, Diaphragmatic Dystonia, Diaphragmatic Tic Disorder, and overlap of these conditions, etc.
Please see webpages 4 & 5, about several more VCD "mimics".
If doctors have not yet seen the "attacks", it may help for someone (relative, friend, etc.) to VIDEOTAPE or AUDIOTAPE the patient during an attack, to show to the patient's doctor(s). This can help to show whether the attack looks like (and sounds like) possible VCD, or, might look like (or sound like) a VCD "mimic", rather than VCD. Do this videotape or audiotape, only AFTER calling for emergency help, or while on the way to the ER/emergency room, and only AFTER trying to help the patient to be able to breathe properly (Please see webpage 4 for what to do during a possible VCD attack).
TABLE 1. Causes of upper airway obstruction (Ref.3--see webpage 9)
believe that the term "upper airway" here, generally refers to the
parts of the respiratory system above the trachea/windpipe, including
the larynx/voice box, pharynx/throat, nose, etc. In some other sources,
I've seen the trachea included as part of the upper airway. The lower airway
includes the lungs, and the lungs include the 2 bronchi, many tiny bronchioles,
alveoli/tiny air sacs, etc.]
Other causes of upper airway obstruction include (at least):
Foreign body lodged in esophagus (Ref.5--See webpage 9)
Croup [a childhood infection, usually viral] (Ref.5,12)
Abscesses (hypopharyngeal or laryngeal) (Ref.5)
Atypical pertussis (whooping cough) in infants. See webpage 5 for description of how ADULT pertussis (Whooping Cough) or CHILDHOOD pertussis can cause either upper airway obstruction &/or VCD &/or vocal cord paralysis (which can pre-dispose one to getting VCD)! Pertussis is usually unsuspected & misdiagnosed as bronchitis, in adults, because it occurs even in vaccinated/immunized adults. (Ref.6,17)
Upper respiratory tract infection [URI] or exercise...in the presence of an underlying anatomic defect, such as subglottic stenosis or laryngomalacia (Laryngomalacia is softening of tissues of the larynx/voice box, & is often due to gastric reflux). (Ref.5,12)
Spasmodic Dysphonia (sometimes called laryngeal dystonia or spastic dysphonia). The abductor type can cause dyspnea on exertion. Some physicians believe S.D. is more closely related to VCD than was formerly thought. Some S.D. patients have a "Respiratory type of adductor laryngeal dystonia": Their 'stridor' is "present throughout the day". Their stridor "disappears during sleep". Also, "the voice is normal." (Most S.D. patients have voice changes, without respiratory problems.). Botox (botulism toxin) injections, done by a very experienced voice ENT (ear, nose & throat doctor) into the vocal cords can sometimes help. See more about this, on webpages 4 & 5. (Ref.6,12,13,17,26)
Laryngospasm due to metabolic abnormalities such as hypo-calcemia caused by hypo-parathyroidism (Ref.12)
Laryngospasm can be triggered by occult (hidden) gastro-esophageal reflux (GER) (Ref.12)
Laryngospasm, especially common among children, appears to be associated with stimulation of the vocal cord area. (Ref.10)
Laryngospasm can be caused by general anesthesia, and involves inappropriate reflex closure of laryngeal structures at three levels: the true vocal cords, false vocal cords, and the supraglottic folds....and can result in pulmonary edema (Ref.12). See webpage 1 for more about comparing laryngospasm to VCD: There is controversy and disagreement among doctors about the difference(s) between laryngospasm and VCD. There is also disagreement about how to define laryngospasm.
Abnormal shape or abnormal motion of areas of throat near the vocal cords, but not actually involving the vocal cords themselves. These problems cause "Upper Airway Dysfunction", similar to VCD. (See Ref.3, on webpage 9, and Dr. Balkissoon (D) on "Links" webpage, and entry (N) on "Links" webpage, about Exercise- Induced Laryngochalasia, which is one type of abnormal motion causing symptoms very similar to Vocal Cord Dysfunction). Treatment is often the same as for VCD.
Vocal cord polyps (Ref.12)
Laryngeal saccular cysts & laryngoceles (Ref.12)
Laryngeal webs [scar tissue--may need surgical removal] (Ref.12)
Subglottic hemangiomas (Ref.12)
Tuberculosis (TB) (Ref.10)
Sarcoidosis and other granulomatous diseases (Ref.10)
Extrinsic airway compression: This can be caused by goiter or mediastinal infections. (Ref.10). A goiter is an enlargement of the thyroid gland, and can be caused by (at least): hypo-thyroidism, that is, under-active thyroid gland, or lack of iodine in the diet, or thyroiditis--inflammation of the thryroid due to an auto-immune condition like Hashimoto's thyroiditis, etc., or infection, or tumors, or hyper-thyroidism, that is, over-active thryoid gland, etc.
Goiters (enlarged thyroid gland) can compress not only the larynx, but also the upper part of
the trachea, causing stenosis (narrowing) of the upper trachea. I believe
that this can predispose one to getting VCD. One patient had VCD for over
20 years, and when a CT scan of her
thyroid gland and trachea
finally done, in 2003, tracheal compression and lateral displacement of
the trachea, due to a goiter, was finally noticed, for the first time!
NEW INFORMATION!-- A neurological "tic disorder" can "mimic" VCD. (2003 VCD Conference, Dr. Susan Brugman, MD--see webpage 8). Diaphragmatic Flutter (DF) may be caused by "central nervous system [brain/spinal cord] disorders" (such as "tic disorder" &/or "respiratory dystonia", involving the diaphragm &/or larynx/voice box). And, "peripheral phrenic nerve and diaphragmatic irritation have also been implicated." [Peripheral nerves are outside the brain & spinal cord.] See Links webpage, links (BB), (CC), (DD) for more information! Please see a neurologist about this.
NEW INFORMATION (NOV., 2009):
http://www.webpediatrics.com/pandas.html tells A LOT about how strep infection can cause PANDAS, and how viruses &/or mycoplasma and other infections can cause a similar syndrome called PITAND:
"PANDAS (Paediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal bacterial infection) and PITAND (Paediatric Infection-triggered Autoimmune Neuropsychiatric Disorders----from viruses, or mycoplasma organisms, etc.)"....which Dr. Susan Swedo and others, educated doctors about, back in the 1990's!!
These 2 syndromes can cause TICS, OCD (obsessive compulsive disorder), Tourette's Syndrome (TS), etc. etc.
Tics can be vocal noises, words, cursing, repetitive actions & words, facial or other body movements, couging, "sneezing", etc. that are almost impossible to stop, and TICS CAN even MIMIC VCD!
PANDAS symptoms may be caused when the immune system makes antibodies to the Strep bacteria, but the antibodies wrongly attack (auto-immune attack) brain tissue (in the "basal ganglia"), partly because the BBB (blood brain barrier) is "breached", so those antibodies can reach the brain.
Additional IMPORTANT & HELPFUL websites about PANDAS, have these links:
In these excellent websites/forums, parents help eachother to find good doctors for their children, and to help patients of all ages who have TICS &/or OCD (obsessive compulsive disorders).
Parents warn that even if the blood work doesn't show obviously elevated results indicating a strep infection, (PANDAS) that parents should still suspect a possible PANDAS-like syndrome! (from a virus, or other infectious organism/bug), such as PITANDS!
VACCINATIONS with a flu shot or other vaccinations, may worsen the PANDAS or PANDAS-like situation.
An excellent book about PANDAS is "SAVING SAMMY" by BETH MALONEY (Sammy's mother).
An additional website, says this (read both links):
http://www.pandas-pitandawareness.org/ (which comes from http://sanevax.org/
) includes the following, and more:
"....This condition [tics, etc.] is triggered by infection. Streptococcal infection has been most studied; however, any infection can trigger this condition. Thus, a new name is being considered: P.A.N.S. is Pediatric Autoimmune Neurological Syndrome...."
The links also discuss possible aluminum toxicity, from vaccines such as Gardasil , FLU SHOTS, &/or from environmental poisoning [Avoid aluminum cookware, aluminum containing antacids, underarm deodorants, etc.].
And, some vaccines contain viruses that (for example, in the case of Gardasil and other vaccinations) might cause PANS (with TICS!).
In "clusters" of children having "tics", find out what they all had in common, including where they ate, in case of a disease "carrier" accidentally sharing germs (bacteria, viruses, mycoplasma organisms, etc.).
Even in individual cases of tics, look for possible infections of any of these: Streptococcus (can be other than just strep throat), viruses, vaccinations, other organisms, etc.
Also, investigate possible Lyme Disease (which can cause tics), in case 1 or more children were exposed to ticks carrying various Lyme Disease organisms.
Toxic chemical poisoning should also be investigated, when "clusters" of tics exsit, or even in single cases with tics. Check at places the children are at (schools, remodeling, nearby factories leaking industrial toxins, toxic spills, illegal dumping of toxic chemicals). See above about aluminum, also.
Because many parents & patients notice worse "tics" when the child or adult eats GLUTEN &/MILK PROTEINS, some doctors, patients, etc., suspect that a gluten sensitivity &/or milk protein sensitivity, etc., may also worsen PANDAS &/or PITANDS, in people who are SENSITIVE TO GLUTEN &/OR TO MILK PROTEINS, so this is why I recommend reading Dr. Kenneth Fine's website about his "EnteroLab", that is in Dallas, Texas, and which has this link: www.finerhealth.com .
Dr. Fine is a gastroenterologist, who himself, has a non-Celiac form of gluten sensitivity, which is known to cause all sorts of auto-immune attacks on various parts of the body, in gluten sensitive people. Milk proteins can also cause auto immune attacks in people who have a milk protein "sensitivity" (sensitivities are different from allergies).
Dr. Fine does non-invasive stool sample testing, about food protein sensitivities.
Direct LARYNGOSCOPY, using correct technique DURING SYMPTOMS "is the most important test in making the diagnosis of VCD. "Incorrect technique could cause the gag reflex to occur during the procedure, which could cause laryngospasm, -- so similar to VCD, if not identical to VCD, that this could interfere with getting accurate results of the laryngoscopy procedure. (Ref.1,5)
NOTE!!: Some of the above causes of upper airway obstruction [or lower airway problems] can also be a FACTOR in someone developing VCD! (See webpages 5, 9, & links webpage, for details.)
Various other medical tests (lung function, digestive, allergy, neurological, etc.) should be done to see if any other conditions like asthma and/or gastric reflux, (neurological) tic disorder &/or respiratory dystonias, and/or other problems may co-exist with VCD in the patient. There may be LOWER respiratory problems (with trachea, lungs, etc.) that need to be diagnosed.
If you have had turbinate reduction surgery (a nasal/nose surgery), please see webpage 2, about a possible surgical complication called Empty Nose Syndrome (secondary atrophic rhinitis) that can "mimic" VCD.
Please get IMMEDIATE EMERGENCY MEDICAL CARE, FOR ANY BREATHING PROBLEMS, to be safe!
You are at the bottom of web-page 3. Next, please
webpage 4, (how to immediately control & treat VCD), & webpage
5, after that.
(While looking at each web-page of this website, you can go to web-Page
9 & the Links web-page, at any time, to look at References.
If you do so now, remember to then read web-Pages 4 &
5 to learn how to treat and control VCD.)